hypermobile spoonie

My family at Fraser Island <3 Everything has been so hectic these past 2 weeks! On monday I started back at uni and it was pretty tough. I only had to go in for 2 hours worth of lectures, however I was exhausted after it all. Tuesday and Wednesday were both full days and my arms are so sore now! On the plus side, I just about passed out from exhaustion and my serious migraine last night so I slept pretty well. Ahh the perks of chronic pain induced exhaustion! My uni friend is being super nice and driving me to and from uni whenever we have classes together which is making it a lot easier for my parents and I. New Lifeproof case :) love it! Sitting in my wheelchair So soft new pj pants! Everyone at uni is being really good about the whole thing and yeah sure I'm still embarrassed to wear the boot and use my crutches but I'm getting used to it. People open doors and talk to me and try and relate to what I'm going through. Of course they have no idea...

So it's officially been a week since I got my boot, a week (and a day) since I fractured my ankle and a week into my recovery. If I was normal (i.e. actually healed in the normal amount of time), I would have 3-5 weeks of recovery left. However, as my fractured elbow (I know I'm a mess) took around 6 months to heal, I don't have high hopes for my ankle. Therefore I am one week into an unknown time period. Which is ok, as long as I can still do my uni placement at the end of the semester. Right now though, I am doing everything by the book. I am not weight bearing on my foot, I am resting as much as possible and only really taking my boot off when I have a shower, or get changed. I am sorry I haven't been posting often or about anything of any real interest, it's just that I have nothing to say. I am bored out of my mind at the moment as I have nothing to do! All I do it watch tv shows all day and rest my leg. Uni goes back next week and I think it's going to b...

I'm tired. So so so tired. And sore. Today I woke up in pain, the type that just can't be shaken, even with copious amounts of the amazing painkillers they gave me at the hospital. That didn't leave all day and so I decided to stay upstairs in my rooms and not even attempt the stairs. As I said yesterday I'm going a little crazy. I painted my nails, then repainted them another 2 times. Like I said. Crazy. I've basically just been reading and watching Grey's Anatomy all day. I really need some hobbies/crafts suggestions for the next week or so. After that I'll be back at uni which is going to be seriously tiring and painful, not to mention embarrassing but oh well! I think I'll be super busy and tired. I did eventually go outside for about an hour this afternoon and chat to my neighbour, only because my mum practically carried me down the stairs and shoved me out the door. Not much you can do when you're broken. Tomorrow my dad's going to have a...

Day 3 and life is getting better. I think the worst pain in behind me (I hope) but I'm going a little stir crazy. I have absolutely nothing to do! I live in a 2 story house and so when I wake up in the morning I have to wait until someone else wakes up to help me get downstairs where I stay all day until it's time for a shower (which I can't do on my own) and bed. There is only so much TV one can watch ahaha. Hopefully some friends will be coming around over the next couple of days to keep me company, but I think I need a hobby. I actually managed to sleep through the entire night last night but woke up quite sore. I don't think these 6 weeks are going to go very fast :( I've been looking online to find a bag that can fit my laptop in it for uni because I won't be able to carry a bag when I first go back next week with my crutches. I can't really seem to find anything and I'm not looking forward to going to uni with the boot. On Thursday I went off t...

Yesterday I was at a trampoline place with some friends from work and even though I used to train in trampolining for years, I landed funny on my ankle and it cracked. An hour later and I was getting put into my first ambulance and taken off to hospital. By 6pm I was being discharged with a referral to an orthopaedic surgeon and a boot sitting place as my ankle is fractured. I've never felt pain like this before. Even after all the chronic pain and everything I've been going through the past couple of years, when I woke up early this morning after sleeping on and off all night the pain was just too intense. Like screaming for my parents and sobbing intense. I can't find any position that is even remotely comfortable or slightly less painful. This is going to be a long recovery. And due to the fracture, I can't continue with my hip rehab, so that will have to be put on hold for 6-8 weeks, possibly longer due to my Ehlers Danlos syndrome and my faulty collagen. Now I...

So I found this link talking about chronic pain, especially in the Australian population. It is so true! I myself have found that APMA is a very useful organisation and finally it's being recognised! http://www.abc.net.au/news/2014-06-20/queenslanders-on-frontline-of-fight-against/5540410 Have a watch! It's amazing :) Good reason to smile today. Lets get some awareness going! BB :)

So my dizziness aka POTS has subsided enough for me to be able to write my essay and this :) yay! Good news is my essay is due today and I've finished and submitted it. I have no idea how I actually went to school and did exams and assignments for 6 months whilst being dizzy! It's terrible! I'd forgotten how great it feels to have a small part of your body working normally. As they say, you don't know what you have until its gone. SO true! I'm super great at procrastinating when I don't find something interesting, I just find all these other things to do. My head is just so full of the mountains of things I need to do that I get overwhelmed and don't do anything. I think that's the thing with chronic pain/illnesses, we have so little control over our treatment, how we feel on a day to day basis etc. that we (or maybe just me) end up planning and trying to control other aspects of our lives. So what I did yesterday is before I started writing my essay I...