Again it's been a month since I posted... Opps!
It's been an intense month! My endoscopy went well. They were worried about an anaphylactic reaction to the Propofol but luckily that didn't happen. Sadly though they didn't find anything so still no answers but I've got my gastro appointment in about 3 weeks so hopefully we'll have a plan to move forward then. I also managed to have a POTS flare after the procedure due to the 'eating and drinking nothing for 18 hours' thing. But after fluids and the threat of an admission I went home to snuggle up with Ami.
Next in September was an anaphylactic reaction to peanuts, uni problems and a possible CRPS diagnosis, amongst others.
Let's just focus on the possible CRPS diagnosis.
As you may or may not know, I fractured my right ankle in 2014, followed by 13 weeks in a boot and crutches + 4 months of rehab, plus rehab that continues to this day. My ankle has since never be the same, but usually it's my hip that causes the most grief. Recently though my ankle has been getting more and more painful, swelling, going funny colours and changing temperatures, all signs of CRPS aka Complex Regional Pain Syndrome. This is something that I've feared since day one but never really thought would happen. We've been trying for months to get on top of this ankle but haven't been able to yet. Sadly when I mentioned this to my physio last week we both thought the same thing... CRPS. My physio's arranged to have a longer appointment with her and the head of the practice to see what we can do. Plus. I'm going to get an MRI done on my ankle before the appointment. Also, I have a pain management appointment in 3 weeks so if we are thinking it is CRPS I can take it to my pain specialist and see what she thinks.
This scares me more than words. I can do a lot despite pain however CRPS is a whole new story. But I'm trying really really hard to stay positive whilst preparing myself for the fact that I might have CRPS. Taking one day at a time and trying to do the best I can. Never a dull moment when you have EDS!
Anyway!! October is Dysautonomia Awareness month so over the next month I plan to post more about my life with Dysautonomia (POTS) and how it affects me.
BB :)
Next in September was an anaphylactic reaction to peanuts, uni problems and a possible CRPS diagnosis, amongst others.
Let's just focus on the possible CRPS diagnosis.
As you may or may not know, I fractured my right ankle in 2014, followed by 13 weeks in a boot and crutches + 4 months of rehab, plus rehab that continues to this day. My ankle has since never be the same, but usually it's my hip that causes the most grief. Recently though my ankle has been getting more and more painful, swelling, going funny colours and changing temperatures, all signs of CRPS aka Complex Regional Pain Syndrome. This is something that I've feared since day one but never really thought would happen. We've been trying for months to get on top of this ankle but haven't been able to yet. Sadly when I mentioned this to my physio last week we both thought the same thing... CRPS. My physio's arranged to have a longer appointment with her and the head of the practice to see what we can do. Plus. I'm going to get an MRI done on my ankle before the appointment. Also, I have a pain management appointment in 3 weeks so if we are thinking it is CRPS I can take it to my pain specialist and see what she thinks.This scares me more than words. I can do a lot despite pain however CRPS is a whole new story. But I'm trying really really hard to stay positive whilst preparing myself for the fact that I might have CRPS. Taking one day at a time and trying to do the best I can. Never a dull moment when you have EDS!
Anyway!! October is Dysautonomia Awareness month so over the next month I plan to post more about my life with Dysautonomia (POTS) and how it affects me.
BB :)
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