So everything is about to change. That's what I have decided. I'm moments away from being diagnosed with either Ehlers Danlos Syndrome Type Hypermobility or Joint Hypermobility Syndrome and so it's time to make some changes and accept the fact that this is what I have to deal with for the rest of my life.
I'm noticing so many more symptoms now. I don't think more are appearing, I think I'm just noticing them more now that I have more knowledge. My fingers and hands become sore faster when writing or even typing, my knees hurt and the biggest one, I can't eat one meal without feeling sick. I'm hoping its due to the wheat allergy/intolerance so when I stop eating wheat it'll go away.
It's just over a week until my mums birthday and we are getting her a Thermomix! So after that it'll be bye bye wheat and hopefully some of my symptoms will go with it. I'm considering going back to my hand therapist to talk about my hand and finger pain because I don't think that my physio should have to deal with it and the hand therapist I saw when I broke my elbow is very knowledgable and it's her speciality after all. I just haven't gotten up the nerve to go back in. I don't know how to tell her. Although I think she'd be happy/relieved to know that I'm closer to a diagnosis. I want to go back to the orthopaedic surgeon that said that my elbow shouldn't still be hurting and tell him to suck it! I have a reason! Even my neurologist who I saw on Monday agrees that it's important to get a firm diagnosis. I'm scared soon I won't be able to type, walk, write or do anything without serious pain. I'm trying so hard not to hyperextended my joints but it's so difficult. It's just natural for me. It's what I know.
A change is coming. I'm making a change. I won't be brought down by my syndromes. I'm going to get better. I can do this.
BB :)
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