Yesterday was a pretty hectic day! In the morning I went to uni for a few hours and then rushed home for my physio appointment. I was greeted by my mum (who took the day off) with an amazing lunch! A sandwich in the form of a french baguette with salad, turkey and cranberry from my favourite french patisserie! It was so special! She'd also picked up some plum vinegar (my childhood in a bottle, like soy sauce) and dairy-free chocolate chips. It just made me so happy! Later we even stopped and bought my very first Salted Caramel Coconut Icecream :) So good!!
This of course was all in preparation for my first physio appointment post fracture. And although I'm only 4 weeks into recovery, I felt it was time to go and have a chat to my physio about everything. She's like my rock and knows pretty much everything about me, as I've known her now for over 6 months! Which I can't believe, but anyway!
So firstly I just went in a chatted to her and we tried some pointing and flexing with my feet to get my brain back into action. Now I have to do a lot of feet recognition practice. It's basically trying to retrain my brain so that it lowers the risk of developing chronic pain in the area, because I'm very high risk for more chronic pain. So after that we were talking about how it feels etc. and she said something like 'I don't want to make you cry!' and then I said that I was all cried out, no more tears anymore. So I think she really thought about it, even though I meant it more as a joke than anything else, but you never know. Then she got my mum in and we talked about getting a formal Ehlers-Danlos diagnosis from the geneticist. Even though I often allude to the fact that I've already been diagnosed, I haven't. However! My physio has told me on multiple occasions, that I have so many of the symptoms that if I don't have it, she'll quit her job. And I believe her! Even going through the pamphlet she gave us with mum, mum was noting all the symptoms in childhood that I had. My physio talked about how it is often confirming and some what comforting to have a formal diagnosis and then I can get the help that I need. Although there are lots and lots of people I should see, I already have some of them under my belt. It'll help us, once I get my diagnosis, to find a neurologist with knowledge of Autonomic Dysfunction so that I can get help with those symptoms, such as extreme fatigue and not sleep. I already have a pain doctor, but I might ask to go back once I have my diagnosis and see what she says, I might even have to attend the pain clinic again because my condition is very different now, and treated very differently to what I received the first time.
I very happy to go back and see these doctors and get on the road to managing another chronic condition, however one part of me is scared. Do I fully understand what this diagnosis will mean? It is a very full on chronic illness that will impact me for the rest of my life. I know personally I need this diagnosis. It will help so much in the future, but I don't know how I'll react when it comes. Even though it's something that I know I have, I'll probably be relieved, and then maybe cry. I'm sure we will have a party, a celebration of finally getting answers. I mean, I think I'd like there to be some sort of celebration, because it shouldn't be all sad. I really don't know how I'll react. I know it'll take a couple of months to get in to see him, but I want to be prepared, because they could have a cancellation any day. It just feels more real this time, like it will happen very soon. Let's get on the road to recovery!
On a happy note my mudlove and greenfeathersproject bracelets arrived yesterday :) Just when I needed them! If you haven't heard about either of these projects go look them up because they are both amazing! I also got to chat to my mum about the world on instagram and chronic illnesses, it's a whole other world out there!
We are strong and we can beat this!
BB :)
This of course was all in preparation for my first physio appointment post fracture. And although I'm only 4 weeks into recovery, I felt it was time to go and have a chat to my physio about everything. She's like my rock and knows pretty much everything about me, as I've known her now for over 6 months! Which I can't believe, but anyway!
So firstly I just went in a chatted to her and we tried some pointing and flexing with my feet to get my brain back into action. Now I have to do a lot of feet recognition practice. It's basically trying to retrain my brain so that it lowers the risk of developing chronic pain in the area, because I'm very high risk for more chronic pain. So after that we were talking about how it feels etc. and she said something like 'I don't want to make you cry!' and then I said that I was all cried out, no more tears anymore. So I think she really thought about it, even though I meant it more as a joke than anything else, but you never know. Then she got my mum in and we talked about getting a formal Ehlers-Danlos diagnosis from the geneticist. Even though I often allude to the fact that I've already been diagnosed, I haven't. However! My physio has told me on multiple occasions, that I have so many of the symptoms that if I don't have it, she'll quit her job. And I believe her! Even going through the pamphlet she gave us with mum, mum was noting all the symptoms in childhood that I had. My physio talked about how it is often confirming and some what comforting to have a formal diagnosis and then I can get the help that I need. Although there are lots and lots of people I should see, I already have some of them under my belt. It'll help us, once I get my diagnosis, to find a neurologist with knowledge of Autonomic Dysfunction so that I can get help with those symptoms, such as extreme fatigue and not sleep. I already have a pain doctor, but I might ask to go back once I have my diagnosis and see what she says, I might even have to attend the pain clinic again because my condition is very different now, and treated very differently to what I received the first time.
I very happy to go back and see these doctors and get on the road to managing another chronic condition, however one part of me is scared. Do I fully understand what this diagnosis will mean? It is a very full on chronic illness that will impact me for the rest of my life. I know personally I need this diagnosis. It will help so much in the future, but I don't know how I'll react when it comes. Even though it's something that I know I have, I'll probably be relieved, and then maybe cry. I'm sure we will have a party, a celebration of finally getting answers. I mean, I think I'd like there to be some sort of celebration, because it shouldn't be all sad. I really don't know how I'll react. I know it'll take a couple of months to get in to see him, but I want to be prepared, because they could have a cancellation any day. It just feels more real this time, like it will happen very soon. Let's get on the road to recovery!
On a happy note my mudlove and greenfeathersproject bracelets arrived yesterday :) Just when I needed them! If you haven't heard about either of these projects go look them up because they are both amazing! I also got to chat to my mum about the world on instagram and chronic illnesses, it's a whole other world out there!
We are strong and we can beat this!
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| Dad and I got matching jumpers :) |
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