Skip to main content

Resting

Resting and taking time out for yourself is very important! Overdoing things just makes everything worse. I'm really bad a pacing... I always have been and it's something I really need to work on. If someone asks me to do something I have huge issues saying no. However, today I'm saying no.

I was meant to go to the shops and buy some makeup and christmas presents, however I woke up very very early from a nightmare (EDS and anaesthesia) and after I got home from hydrotherapy my ankle became really sore. I had a shower, cooked chicken and veggie noodles and minestrone (for later) and now I'm on the couch with my ankle propped up. It's very sore today so I decided to do all my jobs tomorrow. I need it to be ok for placement so I am pacing myself. It probably has something to do with all the physio and stuff I did yesterday. But it was still worth it. I didn't want to of to the pool this morning, but I have only missed one day from being very sick so I dragged myself out of bed and once I got in the pool it wasn't that bad. Although once I got out I felt 10x worse. Some times I feel amazing coming out of the pool and others I feel like I've been hit by a truck. So now my lunch for the next week is cooked I can sit and relax. Maybe watch some tv or something.

It would have been good to get everything done today but that's the thing about being chronically ill, you have to be very flexible!

BB  :)

Comments

Popular posts from this blog

Darkness

Darkness. For a long time that's what I lived with day in and day out. At 16 it's hard to hear that the rest of your life will be filled with pain and suffering, that no one can fix you. I had friends, friends that didn't understand what I was going through, so I retreated and so did they. I can honestly say that I've never considered myself to live with depression, but this time was probably the closest I've ever come to it. I felt like I was stuck in a dark hole that I couldn't get out of. Even worse, I felt like no one even knew I was there. I was the happy girl, the smiley one, the 'I'm okay' one, the one you would never have guessed lives with chronic pain. And I still am. I still am all those things and yet more. I think when you first get given a life changing diagnosis you go through many stages until you get to acceptance, one of them often being feeling isolated and alone. And that's what I felt. I didn't know anyone in my situa...

Finally! Thank you!

So I found this link talking about chronic pain, especially in the Australian population. It is so true! I myself have found that APMA is a very useful organisation and finally it's being recognised! http://www.abc.net.au/news/2014-06-20/queenslanders-on-frontline-of-fight-against/5540410 Have a watch! It's amazing :) Good reason to smile today. Lets get some awareness going! BB :)

Turquoise for Dysautonomia Awareness Month

Again it's been a month since I posted... Opps! It's been an intense month! My endoscopy went well. They were worried about an anaphylactic reaction to the Propofol but luckily that didn't happen. Sadly though they didn't find anything so still no answers but I've got my gastro appointment in about 3 weeks so hopefully we'll have a plan to move forward then. I also managed to have a POTS flare after the procedure due to the 'eating and drinking nothing for 18 hours' thing. But after fluids and the threat of an admission I went home to snuggle up with Ami. Next in September was an anaphylactic reaction to peanuts, uni problems and a possible CRPS diagnosis, amongst others. Let's just focus on the possible CRPS diagnosis. As you may or may not know, I fractured my right ankle in 2014, followed by 13 weeks in a boot and crutches + 4 months of rehab, plus rehab that continues to this day. My ankle has since never be the same, but usually it...