Skip to main content

2 weeks with the boot

My family at Fraser Island <3
Everything has been so hectic these past 2 weeks! On monday I started back at uni and it was pretty tough. I only had to go in for 2 hours worth of lectures, however I was exhausted after it all. Tuesday and Wednesday were both full days and my arms are so sore now! On the plus side, I just about passed out from exhaustion and my serious migraine last night so I slept pretty well. Ahh the perks of chronic pain induced exhaustion! My uni friend is being super nice and driving me to and from uni whenever we have classes together which is making it a lot easier for my parents and I.
New Lifeproof case :) love it!



Sitting in my wheelchair

So soft new pj pants!
Everyone at uni is being really good about the whole thing and yeah sure I'm still embarrassed to wear the boot and use my crutches but I'm getting used to it. People open doors and talk to me and try and relate to what I'm going through. Of course they have no idea but you know, whatever! It's the thought that counts :) I had a meeting with my course coordinator today about my ankle etc. and she was really helpful. She is even willing to move around my placement so I don't have to worry about that. However I nearly told her about my chronic... everything! She already knows about my allergies, but I decided not to tell uni about my other conditions until I get formally diagnosed with EDS-Type 3. That way I actually have a firm diagnosis when I go to talk to them about it. I know I should let them know, but I'm coping fairly well so far, the first exam block went pretty well and I managed to not get too sick so I'm pretty happy. Now to just play the waiting game. In fact I'm going to talk to mum about scheduling my appointment with a geneticist when she gets home today. I need to get the ball rolling. On monday I have to go back to the surgeon re my ankle, which I am not looking forward to. He has no idea about EDS and said to me that a lot of people have hypermobile joints. Yeah well sure, but it doesn't cause a lot of people issues. That's why it's called a RARE CONDITION! It really makes me angry when doctors think they know everything. When he asked me who diagnosed me I couldn't say, because I don't have a formal diagnosis so he was probably thinking I self-diagnosed, which is not the case. My physio, GP and neurologist diagnosed me but now I need to have the formal genetic test done. AHHHH! Anyway, I'm really not looking forward to that appointment.

Lots of studying to catch up on!
Now that I've come home from uni, I've put on my pj's and am watching Friends. Trying not to fall asleep as much as I want to. I really want to sleep well tonight for my x-ray tomorrow. I'm not expecting any changes, due to the fact that my ankle is still twice it's normal size, but a girl can hope. In fact, it looks like my ankle has dislocated. So I'm not sure what's going on there. Guess I'll find out tomorrow!

BB :)
Labels:

Comments

Post a Comment

Popular posts from this blog

Turquoise for Dysautonomia Awareness Month

Again it's been a month since I posted... Opps! It's been an intense month! My endoscopy went well. They were worried about an anaphylactic reaction to the Propofol but luckily that didn't happen. Sadly though they didn't find anything so still no answers but I've got my gastro appointment in about 3 weeks so hopefully we'll have a plan to move forward then. I also managed to have a POTS flare after the procedure due to the 'eating and drinking nothing for 18 hours' thing. But after fluids and the threat of an admission I went home to snuggle up with Ami. Next in September was an anaphylactic reaction to peanuts, uni problems and a possible CRPS diagnosis, amongst others. Let's just focus on the possible CRPS diagnosis. As you may or may not know, I fractured my right ankle in 2014, followed by 13 weeks in a boot and crutches + 4 months of rehab, plus rehab that continues to this day. My ankle has since never be the same, but usually it...
Post a Comment
Read more

Absent

Sorry I've been so absent recently. I've had loads of exams this week and I've been quite stressed and not super healthy. I don't think my body has been coping very well with all the stress and I've had some GI flare ups and joint issues these past couple of days. On Saturday night I went to a party and I paid for my choices the next day as I couldn't walk without my crutches. I do through phases where I am almost jumping off the walls and feeling amazing and the next day I can't walk. Boom and Bust. I've never been very good at managing the boom and bust and stress cycle. I guess I haven't really mastered the art of pacing quite yet. I also did something quite stupid in my semi-drunken state on Saturday. I told some of my friends what I'd been going through. Usually I would never say anything and I wish that I could take it back, but I can't. I guess in that moment I just felt safe. Now don't get me wrong, I didn't tell them everythi...
Post a Comment
Read more

The wrath of medication forgetfulness

I'm really feeling the effects of my stupid forgetful brain this morning. I didn't realise how much my medication helps (because sometimes it doesn't feel like it does anything) until I forgot to take it last night. I have to admit, it probably wouldn't have been a great combination with the alcohol that was probably still in my system when I went to bed, but still, I'm really feeling the effects this morning. The bad part, my rescue medication has some seriously horrible side effects so I probably won't be taking that any time soon. I guess I deserve the pain I'm in this morning, after all I did drink and then forget to take my medication before I went to bed last night, over estimating my pain management skills I think. Now even the sound of my computer keys tapping is sending my brain into sensory overload and I have no idea how I'm going to get all my assignments done today. I deserve this, but still I feel sorry for myself. The feeling of waking u...
Post a Comment
Read more