I am so nervous!!
Less than 3 days until my geneticist appointment and I'm starting to freak out.
Today I went to the physio and had pilates and then our one on one session, which has left me exhausted. To be honest, I've done so much today but I'm feeling really proud of myself for pushing through after closing at work last night.
I didn't make it through the whole pilates class which I was expecting after all the health issues I've been having recently, but I had it 30-35 minutes of the 45 minute class before I had to lie down which was ok. My physio is great in that she gets me and my limitations and can see when I'm about to pass out from exhaustion so she understands and encourages me to lie down and rest. I then had 15 minutes before my appointment with her so she gave me the draft letter she wrote for me to take to my appointment. IT'S AMAZING! We changed a couple (a lot) of things and so she's going to fax it to them, which is stressing me out but hopefully she'll remember to do it. It explains all the issues I've been having perfectly and I even got a surprise... I score 9/9 on the Beighton score for hyper mobility. I swear last lime I saw it I was a 6/9! Don't get me wrong, its not a good thing to score so high but I'm happy because that, combined with my medical history and the letter that she wrote, makes me even more confident that I will get the diagnosis. I've never wanted anything so much before!
She also asked me about the pain management course and said was it effective. I've been thinking about this a lot recently and I've decided that yes, it was effective however I was in the wrong place in my life when I participated and was not up to coming to terms with the fact that I could be in chronic pain for the rest of my life. Thus, I think it would be more effective to do something like that now. I actually managed to tell her that and she agreed and we also talked about drugs and she told me to talk to him about pain management. I'm defiantly going to ask about better pain management because I'm in quite severe pain now more often then not. I might even see if he'll refer me back to the pain management program or the the pain specialist. That program was good so I'd like to go back there but if not, another pain program would be good.
I'm quite nervous that everything won't fall into place but I'm hoping that the letter will get there and everything will be ok. The only thing left now is to tell my mum I don't want her coming and and to actually go to the appointment. I hope he's not stupid and actually listens. I can't wait 1-2 years to see the only other specialist in my state.
BB :)
Less than 3 days until my geneticist appointment and I'm starting to freak out.
Today I went to the physio and had pilates and then our one on one session, which has left me exhausted. To be honest, I've done so much today but I'm feeling really proud of myself for pushing through after closing at work last night.
I didn't make it through the whole pilates class which I was expecting after all the health issues I've been having recently, but I had it 30-35 minutes of the 45 minute class before I had to lie down which was ok. My physio is great in that she gets me and my limitations and can see when I'm about to pass out from exhaustion so she understands and encourages me to lie down and rest. I then had 15 minutes before my appointment with her so she gave me the draft letter she wrote for me to take to my appointment. IT'S AMAZING! We changed a couple (a lot) of things and so she's going to fax it to them, which is stressing me out but hopefully she'll remember to do it. It explains all the issues I've been having perfectly and I even got a surprise... I score 9/9 on the Beighton score for hyper mobility. I swear last lime I saw it I was a 6/9! Don't get me wrong, its not a good thing to score so high but I'm happy because that, combined with my medical history and the letter that she wrote, makes me even more confident that I will get the diagnosis. I've never wanted anything so much before!
She also asked me about the pain management course and said was it effective. I've been thinking about this a lot recently and I've decided that yes, it was effective however I was in the wrong place in my life when I participated and was not up to coming to terms with the fact that I could be in chronic pain for the rest of my life. Thus, I think it would be more effective to do something like that now. I actually managed to tell her that and she agreed and we also talked about drugs and she told me to talk to him about pain management. I'm defiantly going to ask about better pain management because I'm in quite severe pain now more often then not. I might even see if he'll refer me back to the pain management program or the the pain specialist. That program was good so I'd like to go back there but if not, another pain program would be good.
I'm quite nervous that everything won't fall into place but I'm hoping that the letter will get there and everything will be ok. The only thing left now is to tell my mum I don't want her coming and and to actually go to the appointment. I hope he's not stupid and actually listens. I can't wait 1-2 years to see the only other specialist in my state.
BB :)
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