Skip to main content

Day 15 & 16! Half way... Should be studying

I'm half way through the 30 day chronic illness challenge, yes! This challenge has already taught me so much and I can't wait to finish the rest, although I don't know what I'll do when I finish. Well I officially have one exam left to take on Friday before the end of my first uni semester :) I'm so ready for a holiday! Come Friday night I'll be out partying/ drinking my sorrows away after exams. I'm pretty keen actually, especially after this semester has been so stressful. I know that a combination of heels and alcohol won't have me feeling amazing on Saturday morning, in fact I'll be lucky to even be able to walk, however I'm so ready to party! So ready to relax. This exam... I haven't studied. It's only worth 25% and I've actually already passed the subject and there is just so much content that I can't bring myself to study :( I guess I'll be winging it on Friday. Except, I actually don't care. I couldn't care less whether I pass or not, I'm just so over it. I'm so ready for a holiday!

My whole family is going on holidays together in 2 weeks. We are going to the beach, despite the fact that it's the middle of winter... I'm really looking forward to it actually, it'll be a nice change being with all my family, even if I'll be taking my crutches. I'm getting used to having to take my crutches with me wherever I go, I just get too fatigued and sore so it's easier if I just take them and then I can stay out longer, even if people stare.

BTW for the sake of the challenge, I am basing everything on the fact I have EDS-HM, even though I haven't been formally diagnosed yet. I have been diagnosed by my physio, but I am still waiting for my genetic testing appointment.

Day 15: What would you say to people newly diagnosed with this illness?
It's going to be hard. Dealing with any chronic illness is hard, but one that affects your whole body is the hardest. Your body is constantly at battle to try and complete simple tasks such as walking and digesting food. However, it is possible. 'Remission' or 'rehabilitation', if you want to call it that is not a foreign idea. You can regain quality of life. It'll be a slow process, but know that there are always people that can help you, you are not alone!


Day 16: What is your favourite inspirational quote?
'Just keep swimming'
'What doesn't kill you makes you stronger'
'I can't change the direction of the wind, but I can adjust my sails to always reach my destination'

Have a great day everyone!
BB :)

Comments

Popular posts from this blog

Turquoise for Dysautonomia Awareness Month

Again it's been a month since I posted... Opps! It's been an intense month! My endoscopy went well. They were worried about an anaphylactic reaction to the Propofol but luckily that didn't happen. Sadly though they didn't find anything so still no answers but I've got my gastro appointment in about 3 weeks so hopefully we'll have a plan to move forward then. I also managed to have a POTS flare after the procedure due to the 'eating and drinking nothing for 18 hours' thing. But after fluids and the threat of an admission I went home to snuggle up with Ami. Next in September was an anaphylactic reaction to peanuts, uni problems and a possible CRPS diagnosis, amongst others. Let's just focus on the possible CRPS diagnosis. As you may or may not know, I fractured my right ankle in 2014, followed by 13 weeks in a boot and crutches + 4 months of rehab, plus rehab that continues to this day. My ankle has since never be the same, but usually it...

Absent

Sorry I've been so absent recently. I've had loads of exams this week and I've been quite stressed and not super healthy. I don't think my body has been coping very well with all the stress and I've had some GI flare ups and joint issues these past couple of days. On Saturday night I went to a party and I paid for my choices the next day as I couldn't walk without my crutches. I do through phases where I am almost jumping off the walls and feeling amazing and the next day I can't walk. Boom and Bust. I've never been very good at managing the boom and bust and stress cycle. I guess I haven't really mastered the art of pacing quite yet. I also did something quite stupid in my semi-drunken state on Saturday. I told some of my friends what I'd been going through. Usually I would never say anything and I wish that I could take it back, but I can't. I guess in that moment I just felt safe. Now don't get me wrong, I didn't tell them everythi...

The wrath of medication forgetfulness

I'm really feeling the effects of my stupid forgetful brain this morning. I didn't realise how much my medication helps (because sometimes it doesn't feel like it does anything) until I forgot to take it last night. I have to admit, it probably wouldn't have been a great combination with the alcohol that was probably still in my system when I went to bed, but still, I'm really feeling the effects this morning. The bad part, my rescue medication has some seriously horrible side effects so I probably won't be taking that any time soon. I guess I deserve the pain I'm in this morning, after all I did drink and then forget to take my medication before I went to bed last night, over estimating my pain management skills I think. Now even the sound of my computer keys tapping is sending my brain into sensory overload and I have no idea how I'm going to get all my assignments done today. I deserve this, but still I feel sorry for myself. The feeling of waking u...